Family-Centered Care During the COVID-19 Era
Identifieur interne : 000492 ( Main/Exploration ); précédent : 000491; suivant : 000493Family-Centered Care During the COVID-19 Era
Auteurs : Joanna L. Hart [États-Unis] ; Alison E. Turnbull [États-Unis] ; Ian M. Oppenheim [États-Unis] ; Katherine R. Courtright [États-Unis]Source :
- Journal of Pain and Symptom Management [ 0885-3924 ] ; 2020.
Abstract
Family support is more, not less, important during crisis. However, during the COVID-19 pandemic, maintaining public safety necessitates restricting the physical presence of families for hospitalized patients. In response, health systems must rapidly adapt family-centric procedures and tools to circumvent restrictions on physical presence. Strategies for maintaining family integrity must acknowledge clinicians’ limited time and attention to devote to learning new skills. Internet-based solutions can facilitate the routine, predictable, and structured communication which is central to family-centered care. But the reliance on technology may compromise patient privacy and exacerbate racial, socioeconomic, and geographic disparities for populations that lack access to reliable internet access, devices or technological literacy. We provide a toolbox of strategies for supporting family-centered inpatient care during physical distancing responsive to the current clinical climate. Innovations in the implementation of family involvement during hospitalizations may lead to long-term progress in the delivery of family-centered care.
Url:
DOI: 10.1016/j.jpainsymman.2020.04.017
PubMed: 32333961
PubMed Central: 7175858
Affiliations:
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Courtright</name><affiliation wicri:level="3"><nlm:aff id="aff1">Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania, Philadelphia</wicri:regionArea><placeName><settlement type="city">Philadelphie</settlement><region type="state">Pennsylvanie</region></placeName></affiliation><affiliation wicri:level="3"><nlm:aff id="aff2">Division of Pulmonary, Allergy, and Critical Care, Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Pulmonary, Allergy, and Critical Care, Department of Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia</wicri:regionArea><placeName><settlement type="city">Philadelphie</settlement><region type="state">Pennsylvanie</region></placeName></affiliation><affiliation wicri:level="2"><nlm:aff id="aff4">Leonard Davis Institute of Health Economics, University of Pennsylvania, Philadelphia, PA</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Pennsylvanie</region></placeName><wicri:cityArea>Leonard Davis Institute of Health Economics, University of Pennsylvania, Philadelphia</wicri:cityArea></affiliation></author></analytic><series><title level="j">Journal of Pain and Symptom Management</title><idno type="ISSN">0885-3924</idno><idno type="eISSN">1873-6513</idno><imprint><date when="2020">2020</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p>Family support is more, not less, important during crisis. However, during the COVID-19 pandemic, maintaining public safety necessitates restricting the physical presence of families for hospitalized patients. In response, health systems must rapidly adapt family-centric procedures and tools to circumvent restrictions on physical presence. Strategies for maintaining family integrity must acknowledge clinicians’ limited time and attention to devote to learning new skills. Internet-based solutions can facilitate the routine, predictable, and structured communication which is central to family-centered care. But the reliance on technology may compromise patient privacy and exacerbate racial, socioeconomic, and geographic disparities for populations that lack access to reliable internet access, devices or technological literacy. We provide a toolbox of strategies for supporting family-centered inpatient care during physical distancing responsive to the current clinical climate. Innovations in the implementation of family involvement during hospitalizations may lead to long-term progress in the delivery of family-centered care.</p></div></front><back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Davidson, J E" uniqKey="Davidson J">J.E. Davidson</name></author><author><name sortKey="Aslakson, R A" uniqKey="Aslakson R">R.A. Aslakson</name></author><author><name sortKey="Long, A C" uniqKey="Long A">A.C. Long</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Howe, E G" uniqKey="Howe E">E.G. Howe</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Papadimos, T J" uniqKey="Papadimos T">T.J. Papadimos</name></author><author><name sortKey="Marcolini, E G" uniqKey="Marcolini E">E.G. Marcolini</name></author><author><name sortKey="Hadian, M" uniqKey="Hadian M">M. 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Hart</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="White, D B" uniqKey="White D">D.B. White</name></author><author><name sortKey="Lo, B" uniqKey="Lo B">B. Lo</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Cypress, B S" uniqKey="Cypress B">B.S. Cypress</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Mast, M S" uniqKey="Mast M">M.S. Mast</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Rose, S" uniqKey="Rose S">S. Rose</name></author></analytic></biblStruct></listBibl></div1></back></TEI><affiliations><list><country><li>États-Unis</li></country><region><li>Maryland</li><li>Pennsylvanie</li></region><settlement><li>Philadelphie</li></settlement></list><tree><country name="États-Unis"><region name="Pennsylvanie"><name sortKey="Hart, Joanna L" sort="Hart, Joanna L" uniqKey="Hart J" first="Joanna L." last="Hart">Joanna L. Hart</name></region><name sortKey="Courtright, Katherine R" sort="Courtright, Katherine R" uniqKey="Courtright K" first="Katherine R." last="Courtright">Katherine R. Courtright</name><name sortKey="Courtright, Katherine R" sort="Courtright, Katherine R" uniqKey="Courtright K" first="Katherine R." last="Courtright">Katherine R. Courtright</name><name sortKey="Courtright, Katherine R" sort="Courtright, Katherine R" uniqKey="Courtright K" first="Katherine R." last="Courtright">Katherine R. Courtright</name><name sortKey="Hart, Joanna L" sort="Hart, Joanna L" uniqKey="Hart J" first="Joanna L." last="Hart">Joanna L. Hart</name><name sortKey="Hart, Joanna L" sort="Hart, Joanna L" uniqKey="Hart J" first="Joanna L." last="Hart">Joanna L. Hart</name><name sortKey="Hart, Joanna L" sort="Hart, Joanna L" uniqKey="Hart J" first="Joanna L." last="Hart">Joanna L. Hart</name><name sortKey="Oppenheim, Ian M" sort="Oppenheim, Ian M" uniqKey="Oppenheim I" first="Ian M." last="Oppenheim">Ian M. Oppenheim</name><name sortKey="Turnbull, Alison E" sort="Turnbull, Alison E" uniqKey="Turnbull A" first="Alison E." last="Turnbull">Alison E. Turnbull</name><name sortKey="Turnbull, Alison E" sort="Turnbull, Alison E" uniqKey="Turnbull A" first="Alison E." last="Turnbull">Alison E. Turnbull</name><name sortKey="Turnbull, Alison E" sort="Turnbull, Alison E" uniqKey="Turnbull A" first="Alison E." last="Turnbull">Alison E. 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